[彭蒙惠英语] 多发性硬化症与儿童(3/3)

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Multiple Sclerosis And Kids (3/3)
This adult disease is now affecting kids, too

Hope and support

Improving clinical care and support services for young people is another objective for the centers. "The biggest single problem these kids have is: They don't know anyone else like them," said Maria Milazzo, a pediatric nurse practitioner at the Stony Brook MS center.

For support, Tiffany and her mom turned to a group of adults with MS who meet monthly. "It's really helpful to know what other people go through," but many of the group members are in wheelchairs, and "I was thinking one day that could be me," she said.

Tiffany's symptoms first surfaced* in July 2005; after multiple doctors' visits and medical tests, a definitive diagnosis came a year later. "It makes you feel so uncertain and so afraid," said the soft-spoken girl, who takes three-times-a-week injections of the drug Rebif.

At school, Tiffany told a few close friends about her illness but kept it concealed from other classmates and her teachers. She felt conflicted*. She wanted people at school to know how her life had changed, but she didn't want to have to tell them.

Then, an assignment for her anatomy class became an inspiration to come forward. The teacher, by coincidence, had asked her to write a report on multiple sclerosis. Standing before her classmates, Tiffany spoke of her fear, her faith and her confusion about what it means to stand on the edge of adulthood, trying to accept a lifelong illness.

"At times, I still feel like MS is taking over my life. I'm still struggling with that," she said. But "I have to tell myself to stop wondering what will become of me. I know that no matter what, I won't give up."

Vocabulary Focus

surface (v)--- to become known or apparent

conflicted (adj)--- confused or anxious because you cannot choose between very different ideas, feelings or beliefs, and do not know what to do or believe

Specialized Terms

anatomy (n)--- 解剖学the scientific study of the body and how its parts are arranged

degenerative (adj)--- （疾病）退化性的 describing an illness in which the body or apart of the body gradually stops working

myelin (n)--- 髓鞘质（包裹神经纤维的一种脂肪物质） a white, fatty substance that encloses some nerves

              

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